My daughter's name is Rylee Jo. She is 11-months-old and she has SB. L4 Myelomeningocele. SHe has had 4 surgeries so far. The first one was when she was first born (the myelo repair), the second was at 19 days old (VP shunt), the third was at two months old (Shunt revision) and the final one was a couple weeks ago (vesicostomy). We were cathing 6x a day but since her last surgery we no longer what to do this. She has paralysis from the knees down. She is not currently crawling, standing, or obviously, walking.
We did not know about her SB until I delivered. At first we were really scared (mostly of the unknown).
But now, 11 months later, we are overjoyed to have her in our lives. She is the strongest, sweetest person I know. God truly gave me a gift when He gave me her.
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Rylee Jo's Story
Thank you for sharing Rylee Jo's story Erica! We still need more stories,
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Beautiful Angel!!!
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