I Need YOUR Story!

  Encourage someone else to share their story.

The Spina Bifida Stories blog was created with two goals in mind:

(1) One is so other parents (or people living with SB) can find similar stories to their own, so stories that include things like levels, diagnosis, fetal surgery, etc - I "label" those so
they are easily searchable on the side of the blog.

(2) The other goal is to spread positive awareness to those that may have misconceptions about what SB is, especially those that feel pregnancy termination is the ideal solution to a prenatal spina bifida diagnosis.

If you or your child has Spina Bifida, we want YOUR story!

Please fill out the form below to send your story to me. I will then publish the stories over time to spread awareness and support. Thank you so much for taking the time to help with this project!


If you have trouble with the form you can also email me at contact (at) spinabifidastories.com