Support Groups

Here are a few support groups for people and families living with Spina Bifida.

By Topic

General:

• Living with Spina Bifida
• United by Spina Bifida
• Take That! Spina Bifida
• Spina Bifida Kids
• Spina Bifida Connection

Fetal Surgery for Spina Bifida:

• Spina Bifida Fetal Surgery
• Maternal Fetal Surgery for Spina Bifida
• MOMS Trial Participants (Spina Bifida)

Tethered Cord:

• Tethered Cord Support Group

Low/No Tone/Feeling below hips/knees:

• Bonkers for Braces and Wowing Wheelies! A Spina Bifida Group!

By State/Region

California:

• Spina Bifida of San Diego

Georgia:

• West Georgia Spina Bifida Support Group in Columbus, GA. Contact info Danielle Barfield (706) 580-1264 email: barfield.danielle@gmail.com. Meet once a month.

Missouri:

• Spina Bifida Kansas City

New Jersey:

• Spina Bifida Resource Network

New York:

• SB In NY

North Carolina:

• Spina Bifida Support Group of the Carolinas

Pennsylvania:

• Spina Bifida Support Group Pittsburgh and Western PA area

South Carolina:

• Spina Bifida Support Group of the Carolinas

Texas:

• DFW Spina Bifida Families
• Texas Spina Bifida Families
• Spina Bifida Association of North Texas (SBANT)

If you have any suggestions for groups to add to this list, just email me at contact (at) spinabifidastories.com