Sunday, February 5, 2012

Tanner :: Child with Spina Bifida


Although Tanner was born with Spina Bifida, it does not define him or represent who he is. He was simply born with it. Tanner is my first child, and finding out that he would be born with Spina Bifida, Hydrocephelus, and club feet scared me senseless. Looking back now, I have learned more about strength, courage, perseverance, and sheer determination from Tanner. I have also learned not to be shy, to speak up for myself and what my child needs, and defend what I believe in.

Tanner is now 3, and has the best personality. He is witty, funny, and quirky. He lights up a room with his smile, and his imagination soars. Tanner has had 6 surgeries so far and has been in casts for 18 weeks due to his club feet. Although he’s been through so much, he never lets it get him down! His favorite things are Thomas the Train, Buzz Lightyear, Lightening McQueen, Mickey Mouse, and the color green! Sounds pretty typical right?
He goes to preschool now for 3 hours a day, 3 days a week. His teacher says that she loves how independent he is, and wishes some of her "typical" kids could be more like him. That statement made me so proud to be his mom!
Tanner is also a big brother now, and he is the best big brother ever! Tanner already makes his 2 month old brother smile and laugh, Connor adores his big brother, and is always in a better mood when he is around. Tanner loves to help me take care of Connor. He will do anything I ask, and is always patient to wait when he needs something.

Although Tanner doesn't walk, he finds his own ways of doing things. Most people I've met perceive walking as the most important thing, but in the grand scheme of things, it’s really not. It's just a way that "most" people get around. I used to worry so much about Tanner not walking, but I no longer do because I know that he will be ok. Even if he uses a wheelchair, he is still my son & I love him to pieces! He has helped shape me into the person I am now, and I wouldn't change him or that for anything!

If you like to read more about Tanner's story, feel free to visit our family blog. www.raynstarwinward.blogspot.com



Thank you for sharing Tanner's story Star! If you or your child has Spina Bifida, and you would like to share your story, please email me at contact (at) spinabifidastories.com!

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